Showing posts with label alzheimer's. Show all posts
Showing posts with label alzheimer's. Show all posts

Tuesday, December 15, 2009

Choking on the Chalk



One of the great things about elderly relatives and old people in general, is that eventually they just stop trying. Instead of giving inadequate, age inappropriate, naff presents, they admit defeat and hand over the cash instead. It’s a fabulous eventuality for the youth of the era. The kid doesn’t have to try and thank the elderly relative in a fake manner, tinged with resentment for the dinosaur puzzle or a doe eyed baby doll. Instead, the youngster can demonstrate genuine glee, even if the amount is more suitable for a child in the 1920’s.

Cash is cash, no matter how meager. Young people can forgive the miserliness, because old people don’t grasp inflation or the exchange rate or the current value of either. I know, or rather, I remember when that transition crept into my own life, several decades ago. You love them in their decrepitude but really, how hard can it be? Something’s triggered in the expanding brain of the nearly teen; ‘ah well, what can you do, chalk it up to experience.’

It’s easy to remember amid the noise of the television, washer, drier, dish-washer and radio, simultaneous with my all too good fortune, white goods, wealth and an easy life style; as I pick out the candy wrappers from all the plant pots on the ground floor, because diabetics can cheat and none of my children are that devious, yet. I turn off running water and light switches as I travel in the new daylight. I gather detritus as I roam, lost glasses, dropped hankies, notes, clothes, dust bunnies and pills. How can any of us reasonably keep up? So much has changed in nearly a century.

I hear my daughter scream with delight as she comes rushing out of Nonna’s room at this unearthly hour of the morning. Wide eyed she fans out the green backs, a fortune. I watch her father flair with a mixture of irritation and despair, but Nonna’s not bothered, she’s perfectly happy, as anyone would be on Christmas Day. We sit everyone down in front of the pile of birthday presents, wrapped in blue for a girl. Her excitement is uncontainable as she begins - cards first; it’s a rule.

Pacing is everything.

The third card is from Nonna. As she rips it open; more greenbacks appear, a King’s ransom. I put my body between my daughter and my husband, before his hands can snatch it back, a gesture that no-one would understand, as instincts ignite reaction. He turns away to gouge his eye sockets, but that won’t erase the picture. All his careful plans dashed. All his precautions evaded. There is little hope of avoiding a repeat performance at Christmas, in ten days time.

Not now.

Don’t make a scene.

Deal with it later.

They’ll understand, given time, or at least one of them will.

Tuesday, December 1, 2009

Annual Solicitations – sackcloth and ashes




I chatted with my neighbor the night before because he’s older than me and has far more life experience to share - his parents are in their nineties. He knows a lot about Alzheimer’s. He had lots of siblings and ten children. I only have two, one brother, one sister, piggy in the middle. I wore my new cardi, a voluminous grey affair that the shop assistant described as ‘fashionable.’ I was advised that it wasn’t a cardi but a duster, as I still have a lot to learn. She asked me a great number of questions, unusual at the check out, until the penny dropped, as it often does, occasionally, eventually. I was happy to advise her that my accent was British, happier still to tell her that British people speak English too, delighted to explain that England is a tiny little island and is jolly close to Europe. It could be sarcastic but it’s not, just a wee private joke. It made me smile. It always makes me smile. It’s a smile I recognize from my Dad, the most polite, courteous and considerate man I’ve ever met, although my emulation falls short of the mark. I suspect you need to be a Victorian or an Edwardian to match; bygone eras are the yardstick and don’t allow for millimeters.

She was a lovely young thing, fresh faced, apple cheeked, huge dark eyes, and silky haired, ripping off security tags with a vengeance, although it doesn’t do to type cast, even though we all do it. I do it today because my smallest baby is nine, which means it is my mother’s birthday too, eight hours ahead, back in England. I could have phoned at midnight, but octogenarian’s don’t appreciate early morning calls, so I waited. I waited until after all the presents here at home, the excitement of his last single digit birthday: Lego, cats and gold-yellow-orange, he’s so easy to please; the positive reinforcement of the first window on the Advent Calendar.

So much hopefulness amongst the festivities.

I wonder if the shop assistant was the eldest in her family? So forthright. Or the youngest – so girlish. Or the middle child – so pleasing. I wonder if birth order really has an impact? If you’re typecast as the baby of the family, does it stay with you forever? My brother was the baby; he was the brainy one. My sister was the eldest; she was the beautiful one. I was the middle child; the amiable fool. We knew our place, content with the pecking order.

My parents talked in code, made reference to a different cultural age: my brother was the heir, because he was the only boy, fee simple, absolute but not yet in possession, my sister was the eldest unmarried daughter, spinster of this parish, at 12, because it was amusing. I remember the staff at the bank being very amused when I turned up at the window with a hand written missive from my father, my authorization to collect his money, in his own unique style. There could be no mistake. I might as well have had it tattooed on my forehead – my gene pool. It might have been humiliating but it wasn’t – just plain funny. No other customer was likely to describe their emissary in such terms, as marital status is a thing of the past.

It was difficult for him, my dad. I was the first person to ever be divorced in our family. It was a shameful disappointment; the mark of parental failure; it was a heavy blow. It was a long time ago. Divorce did not exist within my parent’s circle, unheard of, unprecedented, unbelievable. The bank tellers were indulgent as they wiped away the tears of mirth – ‘your driver’s license would have been fine!’ they beamed as they passed the note around, colleague to colleague, so that each could read it, glance in my direction to check, see if we were a match – we were – the offspring of an eccentric. There were many ways he could have described me – I was glad it wasn’t age, height and weight, another chattel. He was old school. Whilst I was unmarried, I was his responsibility. Children can be so unwittingly cruel.
When I was divorced I returned to the family fold, soiled goods.

‘This is my daughter – see we have the same eyes.’

‘This is my daughter – she’s skinny like me.’

‘Don’t know where she got her height from – must have been the postman when I was away at sea.’

‘This is my daughter, the dud, divorced.’

‘She has the same wicked sense of humor and an eye for detail.’


All such a long time ago as I listen to the telephone - one ring and he picks up. I can see him sitting in his winged backed chair as we exchange the formal pleasantries that are customary, a script. We practice the script every Sunday before he finishes with the same line, “would you care for a word with your Mother dear?” because that’s all he can manage these days. Today is my mother’s birthday, not Sunday but Monday. The drugs keep him docile, manageable. If my mother is home my father and I exchange two sentences first, before the hand over. He sounds exactly the same. If my mother is not home we exchange three sentences. No-one would ever know. Always the same exchange, two lines or three - so I can tell if she’s home or not. He used to be ten feet tall, magnificent. Now he’s nearer 5. Three sentences means phone again later, as he doesn’t function as a message center. He can legitimately claim deafness when required but I’m still startled when he asks, just one extra question that changes everything and I wish I hadn’t heard –

“who are you?”

I remember, just in time, because I’m good at time travel, back to the 70’s when everything was so much more simple, “it’s me dad, your youngest unmarried daughter.”

Friday, August 14, 2009

Notable quotes on Dementia

In my copy of "The 36-Hour Day" I read about ‘problems with independent living’ and how different families cope. One recurring issue is an older person’s unwillingness to surrender their financial responsibilities when they become overwhelmed. The book quotes many examples. After a series of examples that make perfect sense the last one is described by the authors as ‘extreme.’ This is the example:-

‘Mrs. H…. is fiercely independent about money, so Mr. H gave her a purse with some change in it. He put her name and address in it in case she lost her purse. She insisted on paying her hairdresser by check long after she could not responsibly manage a checkbook. So Mr. H gave her some checks stamped VOID by the bank. Each week she gives one to the hairdresser. Mr. Hutchinson privately arranged with the hairdresser that these would be accepted and that he would pay the bills.’

Well done Mr. H! Now to me, from my perspective, this doesn’t seem in the least bit extreme. It’s a great idea, an accommodation, but it’s not in the least bit extreme. I take great comfort from this tale because it tells me that I am more than well enough equipped to deal with whatever lies ahead of us. I am so used to jumping through hoops, over hoops and around hoops.

Sadly, this also means that I am used to failure. The first attempt doesn’t work, so we try something else and so on, time and again until we find a good fit. I have an example of my own.

You see last year we had this "problem," what we American’s call an ‘issue.’ The issue was Nonna’s independence. I understood how frustrating it was for her to be carless, especially in America. Nonna has always been a walker so instead of being cooped up in the house she naturally decided to take a stroll. Quite often it is difficult to remember details when you’re on holiday such as your hotel room number or perhaps the name of the hotel when they all look so alike, so it was understandable that Nonna had difficulty with this too.

It was a worrisome time.

Other families might be able to allow a grandchild to accompany their Nonna but that wasn’t an option for us. Although our house has more locks and chains than the average home this did not deter Nonna. I’m sure there are many valid reasons for restricting someone’s freedom for their own safety but I was not happy with the idea of imposing such limits on my mother in law. I was not in a position to shadow her movements once she was outside the house as I had other responsibilities, not necessarily more important but certainly more immediate.

The crunch time came when a kindly neighbour returned a thoroughly disorientated Nonna to our front door, as she had found herself completely lost only a few blocks away from home.

We had already printed off the equivalent of a business card with appropriate details for her hand bag. Often she left without her hand bag. Then we tried printing off a six block map of the immediate vicinity, in extra large print, three copies, laminated, but it suffered from the same inherent problem, a map is of no use if it resides in your bedroom when you most need it.

Hence this year, this summer, these issues have been on my mind, worries. What to do? How to help? How to keep her safe? How to engineer freedom and independence? I’d guess that you too are racking your brain to come up with ideas because we all want what is best for Nonna? I feel people’s sympathy and good wishes, so I know that you’ll be as sad as me to know that this year it is no longer a problem, a non-issue. Nonna no longer ventures out of the confines of the garden, so maybe not a non-issue but a different issue entirely.

Sunday, August 9, 2009

Bare your soul



Whilst I’m in the mood, I have another confession but this time I have a much better excuse, and believe me when I tell you that I am in great need of excuses, although I’m trying hard to pull myself out of the lake of guilt.

Just stop wallowing woman!

You see the other thing I missed was that lack of bath room use. My mother shares this experience caring for my father. It’s more difficult for her. Far more difficult with a spouse. This is especially so because of the type of man she married. She basically married an Edwardian, although I don’t think she fully appreciated the consequences at the time. Soft spoken, dignified and polite, they both had their traditional roles etched on the marriage certificate. All that has now changed. Nobody tossed her the reins as such but there she is, in charge of the horses.

Bathing became a big issue, an issue that I unfortunately had to mention. It was one of many bug bears. She knew it was an issue but only one of many. A different order of magnitude. So I tried my best to be gentle but my mother is oh so very different from me. A gentle prod was more than enough to beget action. She told me on the phone the following week. She was remarkably cheerful, far more cheerful than I’d heard for a long time. “I did it!” she beamed. “Did what?” I asked. “I phoned social services and got the ball rolling. Sometime next week a nurse will call to give him a bath. I’m done with it. Problem solved.” And solved it duly was but my predicament is far more delicate if not precarious. Nonna has been with us almost five weeks. It is the height of summer and yet not so much as a trickle of water or a smear of soap has been in contact.

I do have an explanation. Let me explain for us both, as they’re inter-weaved. It has always been Nonna habit to swim, daily. For some while last year this was difficult to negotiate since the boys couldn’t really swim, although they believed that they really could swim. We fell into a habit. I would open the pool, bring back the cover very quietly, half an hour in advance so that Nonna could enjoy thirty minutes of exclusive alone time. After that, she would sit on the side of the pool better able to watch her grandchildren, one natural seal, two flailing whales and me trying to keep everyone afloat. It was the cause of much amusement, to her at least. During the kerfuffle she would amble away to have a shower before the deluge of children ousted her.

This year, things are different. They are different but I didn’t notice particularly at first because other events obscured the true scene. The scene was basically green, a pool full of abundant, blooming algae. Technically it was safe to swim but swimming in pea soup is not a very attractive option. So, no swim equated to no shower, not daily, nor weekly, not ever. Once again I completely failed to connect the dots because it would appear that I am far more of a creature of habit that I should generally care to admit.

So there you have it, or rather I have it, or rather, she doesn’t have it, but have it she must. It’s just the ‘how to’ bit that I’m searching for but I have a tentative plan or two. It’s the how to approach with diplomacy that eludes me. I can think of few things more galling than to suffer such a personal attack from a daughter in law.

Since the pool is recovering, slowly, I could just wait a few more days, but that smacks too much of avoidance on my part. One tentative plan is to prompt, something like, ‘can I turn the shower on for you?’ The other tentative plan is to suggest that I do her hair again. If she’s going to wash her hair she might as well wash it in the shower rather than the sink. Lastly, if all else fails I shall use my trump card, the grandmother one. I shall exploit my son’s aversion to showers and ask if Nonna will don her swimsuit and accompany him into the shower to supervise. I am reluctant to use this one as I fear for Nonna’s safety in such slippy conditions but at least she won’t need her hearing aid to protect her from his agonizing screams. Needless to say, I still wear my learner plates and would welcome advice from all quarters. I’m tempted to trust my instincts but I’m not overly confident in this [new] department. Mistakes are inevitable but I’d prefer them not to be big ones nor permanent, as I suspect we all have a long road ahead of us.

Friday, August 7, 2009

Armed but hopefully not too dangerous

After far too much “thought,” I reach a conclusion. It is the sort of conclusion that my Dad would call ‘the bleeding obvious,’ now that he also has Alzheimer's, now that he has mis-filed his diplomacy corps. Alzheimer's and Dementia come in many different forms. I can liken it to a spectrum, which is “familiar” territory. Also, you don’t just wake up one day and find that the mind is lost. It’s much more gradual, spiky with dips. These two facts, although stark, give me just the toe hold I need.

I leap into action.

I delegate the “tough job” to my “daughter” and her partner Mr.B. They are volunteered to take the "children" and Thatcher the dog, to the park for at least an hour whilst I tackle Nonna. I tackle Nonna in what I hope will be the road of least resistance, hegemonic.

I set her up in the family room, the room furthest from her own bedroom, with the television that works, coffee, snacks, her glasses, handkerchief and make excuses. After making excuses at 50 decibels I excuse myself. Myself then litters the pathway from the family room to Nonna’s room with a series of obstacles, the kind of obstacles that will make noise and warn me of her impending approach. I am dubious that this, my new ‘self,’ demonstrates deviousness. Although I am often devious, I am usually devious with my children, not adults.

I creep into her room, draw the blinds and take in the full picture. The full picture is much worse than my initial fears. I unpack her suitcase and hang three quarters of her clothes in the closet on the new hangers that she has apparently ignored or possibly missed. I remove all other clothing from wherever I discover it, change the bed linen, clean every nook and cranny, vacuum and remove as much superfluous furniture as possible to aid ease of movement. I am just about finished when I hear a woof as the troops announce their return. I pick up all my props and leg it back into the family room to adopt an innocent air in front of Nonna who is enjoying a deep and well earned sleep.

We continue our day as usual, or as usual as is possible under our newly minted version but I wait. I fear that she will be angry at the invasion. I worry that she might be upset. I wonder if it will cause even further confusion. I wait for the shoe to drop or possibly the penny. I have to wait a very long time until my husband comes home. I explain our doings to him in unnecessarily hushed tones before he ventures off to the lioness’s den. I hover, within ear-wigging distance.
“Hello mum! Did you have a good day?”
“Alright….I suppose?”
“Are you ready for some dinner?”
“Wot?”
“I said, are you ready for some dinner?”
“No……I said wot?”
“What about what?”
“Dis ting?”
“What thing?”
“This……..room…….wot as appened ere?”
“I’m not sure………but it all looks very neat and tidy.”
“I know……..but ow it is all neat and tidy?”
“Hmm good question.”
“I tink maybe a fairy az come and tidy it all up for me, no?”
“!”
I can't see them but I feel the flinch, hear the silence, smell the breathing of hot air.
“Don look like dat……I know ow it is done…..it woz Maddy…….I am teasing you! You silly goose!”

Tuesday, August 4, 2009

Earthquake country. What to do?

I have an internal debate as to whether to broach the subject of his mother’s declining health?

On the one hand, she is his mother.

On the other hand, she is his mother.

It’s my birthday so I am older, we both are, and he has noticed that we are middle aged. It is a sad day for him. He is sad with frustration because Nonna’s new television doesn’t work, nor the TIVO, nor the fire alarm, nor any number of household items in disrepair. He worries greatly about these things in part because they are all fixable but other things are not. It is easier to worry about the unfixed things that are fixable. I would be inclined to say ‘denial’ but I’m not a very good American. Feeble Americans would say grief stricken. It’s not as if he doesn’t know. I know he knows. I heard him just yesterday in controlled yell mode, “where is your hearing aid?” But of course a hearing aid doesn’t mend hearing, nor does it restore memory, “I’ve just told you a hundred times, they are married.”

I glanced into the garden where my daughter and her partner sat cringing under the pergola.

There was a catch in his voice. I recognized that catch as I hear it coming out of my own mouth sometimes too. Sometimes it’s the catch of despair other times mere annoyance and I can tell the difference. I’ve had more practice, much more practice. I think I’ve already mastered controlled, cheerful yell for approximately 95% of the day, even when it’s night time. I’m working towards a 100% clearance rate but it’s not easy.

There are only two repeats that cut me to the quick. The first one is the ‘married? / who is that man?’ question and the other is the ‘are they still autistic?’ question, but I’ve learned my stock answer by heart, the words, the tone, the delivery and that helps a lot.

But it’s different for him. I have the degree of separation, no blood, but he’s her only child, very bloody. All the onus is on him, I’m just a bystander in the headlights. I don’t know how to get the balance right between interference and privacy? I’m on unfamiliar territory and the ground is shifting fast.

Monday, August 3, 2009

Traveling light



I moan to my mother on the telephone about laundry. My mother moans to me on the telephone about Alzheimer’s, my father’s current state of health. It’s a form of international therapy for care givers, the cheap option, the time saving option, the option that relieves us of the problem of actually leaving the house. As we pause for reflection about our lot in life a very small shard of knowledge pokes me in the brain, two inches above my left temple, sharp, pointy with a nasty little thorn on the edge. We say our good byes and hang up.

I hover by the phone and think.

We have been back in the States for a month, four weeks just over, with Nonna, her tiny suitcase and her small collection of personal belongings. I had noticed that she has been more accident prone. I had noticed that her clothing was less than pristine. I had noticed she hadn’t been handing me presents of her clothing to add to the load. I had not connected the dots. I had noticed the lack of complaints, relieved. I had not noticed that her prompt was absent:-

“Why you not change my sheets today?”
“Because I try and stagger the loads.”
“It’s not my turn today?”
“No…..your turn is on Wednesday.”

A two liner exchange imprinted in my inventory of replies but I’ve not used it, not once, in four weeks. I skip along to her room and peek inside. I have not been inside for four weeks. I have respected her privacy or so I thought. Nonna naps on the bed because of a sleepless night. I know it was a sleepless night because I asked how she slept. She replied with the second of her alternating responses:- “me? I always sleep perfectly!” but the coffee machine full of spent grounds doesn’t lie. I watch her sleep, curled over tousled bedclothes. A picture of innocent neglect or overlooked failings. Someone must do something. Something must be done. I am the someone, but what to do? Or maybe, just how and when and which way?

Saturday, July 25, 2009

Freeze Frame

I am on pause mode at the kitchen sink, mid morning. Five million tasks completed, five million more to do, but I do tend to exaggerate, when she appears again. We run through her usual itinerary of questions, all part of the daily routine, a check list and head count of everyone’s whereabouts and doings. I do not care to recall or count the number of times we have already started the day.
“Good morning Nonna? Good night’s sleep?”
“Sleep? Me? I never sleep.”
We continue for several minutes, same tone, same answers, careful to ensure that there are no hic-cups. As she wanders off with a cup of hot slopping coffee I feel a dip in my spirits. I stare at the empty pristine sink with a rising sense of guilt and confusion when she re-appears at my side to place the coffee mug down.

We start again.

“Good morning Nonna? Good night’s sleep?”
“Sleep? Me? I always sleep perfectly but I am you know……a bit weary.” I jump at the chance.
“I know what you mean. The boys are stuck on 4:45 a.m.”
“Wot? Dat’s morning anyway? Or is dat night time?”
“You tell me?”
“Wot you are den?”
I blink because English is a foreign language when translated from the Italian, but she unravels, “why you are so …….dirty today?”
“Gardening.”
“No…dat……..it’s white……grey?”
“Clay.”
“Oh you have a nice play wiv your pottery den?”
“Yup.”
“When you do dat den?”
“Just now.”
“So you are cook now? Wot are you cook today?”
“I haven’t quite figured that out yet.”
“Well……dat’s your business. Wot else?”
“Hmm?”
“You look sort of……..ow you are?”
“Tired.”
“Tired! You’re too young to be tired. Ow old you are now den?”
“48.”
“48!” She fluffs her palms in exasperation, “when I was 48…….let me see now…..?” I see her reflect upon earlier times with her one delightful child, my husband, before she continues, “yes…..maybe…….don’t worry yourself…….soon you will be really old too and den you can forget all about it.”

She has a point.

Monday, July 20, 2009

Not everything is bigger and better in America

I imagine that the entire neighbourhood is now familiar with our nightly heated debate, in the garden. In the heat of the garden we script our way through a well worn conversational path, without malice, well rehearsed. At some stage during dinner our Italian Nonna begins to point at the fence as English words fight for supremacy.
“Look at dat!” Her surprised delight for any wildlife is always genuine, always new.
“Ooo yes!”
“It’s a squirrel?”
“Yes, it’s a squirrel,” I confirm, at 50 decibels in my controlled yell voice.
“It’s a squirrel is it?”
“Yes.”
“Mangy little ting isn’t it?”
“Yes.”
“Not like English squirrels.”
“No.”
“English squirrels are fat and round with big fluffy tails.”
“Yes.”
“Do you not feed dem enough?”
“No, we don’t feed the squirrels.”
“Hmm we don’t feed dah squirrels in England either.”
“Indeed.”
“But dere still fat and fluffy and you know……gorgeous. Not like deez skinny little American squirrels.”
I listen to the American crickets, American birds and baited breath of all my American neighbours. I suspect that everyone is word perfect within a five mile radius of our house.

We await deportation papers shortly, assuming we’re not lynched first.

Saturday, December 27, 2008

Sugar Plum Fairy

Every once in a while I’m tempted to run from the room screaming “why can’t you all leave me alone?” and then I wake up to start another new day.

It is on just such a day that I busy myself with tidiness whilst the children play in the dog park with all other members of the family, barring Nonna. Nonna sits on the couch with her crossword puzzle yelling clues at me, not because I am deaf but because I am a rapidly moving target. In between yells devours piles of candy with glee. The stack of neatly collected candy sits on the tray on the empty seat of the sofa, within easy reach. A foolish error on my part.

As always I dither. It seems inappropriate to advise one’s elders and betters about candy consumption, even if they do happen to be diabetic. On the other hand, quite often Nonna forgets what she has consumed, towit four mugs of espresso in twenty minutes. In other circumstances I would more than welcome her wolfing her grand-children’s candy supplies, as sugar often affects their activity rates, autistic or otherwise.

After more than an hour I have made discernible dent in the mess nor have I managed to contribute usefully to the puzzle completion. On the other hand the pile of candy has disintegrated to a few crumbs.
“Wot about dis one den?” she hollers as she scrumples another wrapper. I sweep past weighed down with boxes of recycling Christmas paper, “hmm?”
“Wot dis say, it is…… ‘American seasonal treat beats the way up?’ Wot you tink den?”
“Er…..an anogram maybe?”
“I know dat……but wot is dah answer?”
“Let me think about it …….a while.”
As she sucks a finger tip she scribbles on the margin of the paper, “so we ave ‘candy’…….and…… ‘canes.’ Wot you tink den?”
“Hmm.” I remain focused on the tasks at hand, namely tidying up and formulating tonight’s menu before we are deluged with children again. I am in desperate need of more potato recipes as there are still two untouched 10 lb bags of potatoes lolling around the garage in idleness, instead of fuelling my family on the cheap. I hear another wrapper rustle. It catches my eye as it falls to a glint on the carpet between Nonna’s feet. As I reach across to pick it up Nonna’s eyes are upon me above a broad grin, a child caught in the act of mischief, “you worry too much you know. Soon you will be old and lonely, just like me.”
I gulp guilt. I pause and sit back on my hunkers, “aren’t you a bit worried about your sugar levels?” I yell.
“Phiff! No. I don’t worry. I’ll worry when I’m dead.” I know my face furrows. “Don’t look at me like dat!”
“But your test will be high tomorrow and then you’ll be……annoyed.”
“Tests! Phiff! I jus forget to do dah test.”
I roll my eyes, mock despair. I just don’t know what to do with her.
“Aha!” she beams…..I got it……ascendancy!”

Saturday, December 20, 2008

The Twelve Days of Christmas




Our lives cycle through family routines. One of our routines during the festive season, is to sing before bedtime. At 7:30 every night Nonna announces to all present that she is going to bed.
“You can’t! It’s only 7:30,” he bellows at his mother pointing to the clock above her head as he tilts her by the shoulders. The whereabouts of the clock is always a mystery.
“Gawd! Only 7:30? But it’s dark!”
“Anyway, you can’t go to bed yet, we’re going to sing.”
“Sing? Can you sing?”
“Yes. We sing every night remember?”
“Wot you sing den?”
“The 12 days of Christmas.”
“It is Christmas?”
“No, not yet, not until Thursday.”
“Wot number it is today?”
“19th.”
“Can’t you sing anything else?”
“No. That’s the only one I know,” he lies. She chuckles as he herds her into the family room, each night, every evening. I always have the same mis-givings: do we stick to the familiar script to avoid confusion or should we freshen the communication with a new version that reflects the respect we should have for everyone? It seams clear to me that on the 19th day of December, this routine has not been adopted by anyone. It still requires Herculean effort to persuade everyone to join in.

On the 19th day of December I phone my father. My father sits in his wing backed chair by the afternoon coal fire. His elbows rest on the arms with his fingers interlocked under his chin as his eyes rest. When the telephone rings at full volume, his right hand drops to the receiver and he delivers his script. I am careful to ensure that my first words hit the mark, “Happy Birthday dad!”
“Oh it’s you dear. Thank you. Would you like to talk to your mother?” The same, always the same. I can see every nuance from a distance of over 5000 miles in a different time zone. I chat to my mother about her frustrations. All over the world people cope with what used to be merely elderly but what is now labeled Alzheimer’s. I have no answers nor guidance merely a willing ear. “Did he thank you for your present? I bet he didn’t, did he.”

My dad, the politest man to ever grace the planet, or so I liked to think. Not the politeness of etiquette, but the real politeness. The ability to put other people at their ease, the skill of noting the details with the precision of gentle appreciation.
“I’ll put him back on the line, I’ll make him thank you. It’s ridiculous that he can just get away with it!” I wince at her desperation, clinging to a man that no longer exists in the same form. I weep silent tears for my dad who doesn’t need them.

It’s a solo performance as he belts out the lyrics. I herd children and persuade people to follow my finger along the lines of words. One of my sons adds a noise to the end of each ditty, another places soft puffed icon on the accompanying banner. Someone has the habit of running off with the ‘five gold rings’ for nefarious purposes of his own.



Nonna taps her ears either to tune in to the song, or possibly to tune out. I snap the book shut with the crescendo of the finale, a visual and aural cue for them to scarper, a flock of birds in flight. Four adults sigh a deep breath. “Are you finished den?” she asks, her head tilted, expectant.
“Yes…..”
“I can go to bed now?” she asks her son, pulling her cardi in tight to her chest, an innocent? Maybe mischievous? I cannot tell. I prefer not to know.

Tuesday, December 16, 2008

Cross over strategies

During the day, Nonna and I manage reasonably well. During the weekends her son is around to help field the demands, requests and needs of everyone but when the children return from school there are more demands upon my attention without another adult to field.

On the day that two children are at home sick, it becomes immediately apparent that I am in dire need of an alternate fielder. Because there is illness, there are short fuses and fuzziness.

One huge hurdle is Nonna’s inability to hear when other people are speaking. Another huge hurdle is the children’s speech delay. Whilst they struggle to formulate a question, statement or comment, Nonna talks simultaneously. This produces a cacophony of sounds and a great deal of upset all round. Accusations of ‘interrupting’ from the young with accompanying meltdowns, and accusations of disrespect from the "older generation" with accompanying hurt feelings. Nonna can’t hear the screams of "you said dat already, "my turn." The children do not understand deafness fully. The children cannot understand why an adult would be behave in what they recognize to be a rude manner.

I am at a loss as to how to bring the two warring factions back to harmony?

I take temperatures on the hour to save confusion. “What you are do to his ear?”
“It’s a thermometer, to check on his fever?”
“Is he ill?”
“Yes.”
“When he is better?”
“Don’t know I’m afraid. We’ll just have to let it run it’s course.”
“A day off school won’t hurt.”
“No, although it’s the second day. Better this week than next week though.”
“Wot happen next week den?”
“Christmas.”
“Christmas? Already? It’s not cold enough for winter.”
“Next week.”
“Wot dah number today?”
“Tuesday the 16th of December.”

It’s the same exchange we have had every 20 minutes since early in the morning.

“When it is?” ask the sniffly one.
“Remember? Look at the timer dear.”
He jumps unsteadily off the couch to peer at the count down timer to see that there is still another six hours and 20 minutes until electronics time. We have had this same exchange every 15 minutes since early in the morning.

I pause, wipe off the end of the thermometer and reach for the white chart. It only take a few moments to cover the main pertinent points, those most persistent of recurring questions. It is important to keep elderly people engaged, included and stimulated. It’s not a permanent solution but during the times when I am tied up with other commitments, I hope I can gently guide Nonna through her own stressful world. She’s seen me use this many times with the children. With a little imagination it can easily be disguised to appear to be for their benefit, and surreptitiously help me too.






All "tips" and tricks gratefully accepted.